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Posts Tagged ‘hospice’

092619.-Geo-Washington-Bridge-from-NYP-windowJPGI have been standing at the hospital window, eating granola and looking west at the George Washington Bridge over the Hudson River as the sun comes up. On the far shore is a town where my siblings and I grew up. I remember when my baby sister came home from the hospital years ago. I got off the school bus and saw this tiny creature with a very red mouth sleeping by the front door in a cradle.

Hello, New Day!

I am with my sister. For her, there will not be many new days. She is in hospice. That is where the brain cancer called glioblastoma lands its victims more often than not. I am feeling so angry at this disease. I told the physician assistant that when you go on the web, it says the cancer is rare. Huh! Everyone I mention it to knows someone who has it or had it. The PA admitted they are seeing a lot of cases now.

No one seems to know what causes glioblastoma. Radiation was mentioned. But from what? Worse, no one knows how to cure it. “Let’s try this, let’s try that.” Some of the treatments provide a little respite.

Yesterday my sister’s latest cancer-related episode was diagnosed as pneumonia, and the amount of poking and fiddling and blood taking from now-invisible veins was just too much. Her doctor explained the situation and helped my sister and her husband come to the conclusion that glioblastoma was going to win against my lovely little sister very soon and that she’d rather be comfortable than poked and prodded to no avail.

So here we are. Our brothers have flown in. John and others have called. Suzanne got my husband to babysit so she could come by train. We’ll all be saying good-bye.

The cancer diagnosis was only one year and two months ago. One year and two months.

Anyone concerned about the increase of this and other mysterious brain cancers might want to find a brain cancer research center to give to. There is actually a ton of research going on, and perhaps surprisingly, all the centers seem to be collaborating. Something is bound to break through one of these days.

 

 

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Saw an amazing photography show this morning. Lori Waselchuk chronicles a program at a maximum security prison. The exhibit flyer says, “A life sentence in Louisiana means life. More than 85% of the 5,100 inmates imprisoned at the Louisiana State Penitentiary in Angola are expected to die there. Until the hospice program was created in 1998, most prisoners died alone.”

The inmates who work in the hospice program are pictured caring for others and keeping a 24-hour watch when someone is near death. They “go to great lengths to ensure that their fellow inmate does not die alone.”

I don’t want to be a pollyanna about this (I can see that some patients are still so susceptible to violent outbursts that volunteers may visit them only by speaking through a small window), but I am interested that many of the hospice workers discover a new side of themselves. George Brown, 49, says, “The most important thing I have learned as a hospice volunteer is that I have a heart and it has feelings.” Sometimes the guards find a new attitude in themselves, too. The flyer adds that the show, Grace Before Dying, “reflects how grace offers hope that our lives need not be defined by our worst acts.” Read about it here.

I have heard about one or two similar prison programs. Here is a piece about the Yoga Prison Project , started at San Quentin in California. And here is a movie about a prison meditation project called Dhamma Brothers.

My second cousin Alex was so energized by teaching meditation in a Boston prison that she is now entering a graduate program to gain more skills.

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