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Photo: Baileigh Industrial.
Above, using the Action Trackchair around the house. Wilderness adventurers love it, too.

Technology is erasing the barriers for people with disabilities who want to do everything other people do. At the Washington Post, Andrea Sachs and Natalie B. Compton wrote on Nov. 8 about a 500-pound miracle arriving in US parks: all-terrain wheelchairs.

“Cory Lee has visited 40 countries on seven continents,” they write, “and yet the Georgia native has never explored Cloudland Canyon State Park, about 20 minutes from his home. His wheelchair was tough enough for the trip to Antarctica but not for the rugged terrain in his backyard.

“Lee’s circumstances changed [recently], when Georgia’s Department of Natural Resources and the Aimee Copeland Foundation unveiled a fleet of all-terrain power wheelchairs for rent at 11 state parks and outdoorsy destinations, including Cloudland Canyon.

The Action Trackchair models are equipped with tank-like tracks capable of traversing rocks, roots, streams and sand; clearing fallen trees; plowing through tall grass; and tackling uphill climbs.

“ ‘I’ll finally be able to go on these trails for the first time in my life,’ said the 32-year-old travel blogger, who shares his adventures on Curb Free With Cory Lee. …

“In 2017, Colorado Parks and Wildlife launched its Staunton State Park Track-Chair Program, which provides free adaptive equipment, though guests must pay the $10 entrance fee. Michigan’s Department of Natural Resources has placed off-road track chairs in nearly a dozen parks, including Muskegon State Park. …

“South Dakota is [expanding] its squadron: On Tuesday, the South Dakota Parks and Wildlife Foundation unveils its second all-terrain chair. South Dakota resident Michael M. Samp is leading a fundraising campaign to purchase up to 30 chairs. Last year, Samp’s father packed up his fishing pole and piloted a track chair to Center Lake in Custer State Park. He reeled in trout, just as he had before he was diagnosed with spinal cerebral ataxia. …

“This month, the Minnesota Department of Natural Resources will wrap up its months-long pilot program that tested out the chairs in five parks. … Said Jamie McBride, a state parks and recreation area program consultant with the Parks and Trails division of the Minnesota DNR, ‘People have told us this is life-changing.’

“The Georgia initiative was spearheaded by Aimee Copeland Mercier, who suffered a zip-lining accident in 2012 and lost both hands, her right foot and her left leg to a flesh-eating bacterial infection. Copeland Mercier, a psychotherapist and licensed clinical social worker, tested several types of all-terrain chairs before committing to the Action Trackchair, which several other state programs also use.

“The Minnesota-based company was founded by Tim and Donna Swenson, whose son, Jeff, was paralyzed in a car accident. The original design resembled a Frankenstein of sporting goods parts, with snow bike tracks and a busted boat seat. Today’s model could be an opening act at a monster truck rally.

“ ‘I was floored by what it could do,’ said Copeland Mercier, whose foundation raised $200,000 to purchase the chairs at $12,500 each. ‘Oh my gosh! I can go over a whole tree trunk, up a steep incline and through snow, swamps and wetlands. If I took my regular wheelchair, I’d get stuck in five minutes.’

“Each program has its own reservations system and requirements. For Georgia’s service, visitors must provide proof of their disability and a photo ID, plus complete an online training course available through All Terrain Georgia. Once certified, the organization will forward the rental request to the park. Copeland Mercier urges visitors to plan ahead: The certification course takes about an hour, the foundation needs 72-hour advance notice and the park requires a 48-hour head’s up.

“ ‘These are 500-pound chairs,’ she said. ‘There are some risks involved.’

“The Minnesota DNR, which owns and maintains its five chairs, advises visitors to call the park to reserve a chair. …

“Track chairs can conquer a range of obstacles, but they do not work in all environments.

“ ‘You need the width. If two trees are too close together, the wheelchair can’t pass between them,’ Copeland Mercier said. ‘And some inclines are too steep. The chair also can’t go down staircases.’

“To steer visitors in the right direction, parks have created maps highlighting the trails designated for the track chairs, such as Staunton State Park’s trio of routes that range from roughly three to four miles. … McBride said one goal is to erect markers that would provide detailed information about the hike, such the extent of accessibility. ‘We want to let people know if they can get all the way to the waterfall or halfway,’ he said, using a hypothetical example.

“Copeland Mercier also has a wish list. She hopes to expand the network of chairs to other parts of Georgia, such as the coastal, southern and central regions. Once the foundation acquires several vans (another aspiration), the staff could move the 30 to 40 chairs (ditto) around the state to fill fluctuating demand. She is also eyeing other states.

“ ‘North Carolina is next,’ said Copeland Mercier, who divides her time between Atlanta and Asheville, N.C. But the grand plan is even bigger. ‘The goal is to alter the U.S.A.,’ she said.”

More at the Post, here.

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Photo: DiverseAbility.
After leaving academia, Alice Sheppard “began exploring the techniques of dancing in a wheelchair and learning how disability can generate its own movement.” 

An unusual and dramatic entertainment took place in Chicago in May. It was the brainchild of Alice Sheppard, a fearless risk taker in a surprising sequence of careers. Today she is a choreographer, but as recently as 2004, she had never considered that dance could be compatible with her disability. According to DiverseAbility magazine, “she was a professor in medieval studies at Penn State.” Then a dancer with one leg dared her to try a dance class.

Lauren Warnecke says of Sheppard at the Chicago Tribune, “Alice Sheppard does not shy away from a challenge. In devising her latest dance, ‘Wired,’ she and her Bay Area disability arts company Kinetic Light had to first write the rule books for wheelchair aerial dance.

“Kinetic Light’s mission is to create art that centers disability. Sheppard and the rest of the company are disabled artists who make work for disabled performers. Key to that vision are questions and advocacy around access — who ‘gets’ to dance and who ‘gets’ to watch or experience art? Since the company’s founding in 2016, Sheppard’s work consistently explores the intersections of disability, race and gender. ‘Wired,’ premiering May 5-8 at the Museum of Contemporary Art in Chicago, is no exception, though it’s the first of Kinetic Light’s growing catalog to incorporate aerial dance.

“Actually, the first step for Sheppard was to read everything she could find about barbed wire. Sheppard, a dancer, choreographer and scholar with a doctorate in medieval studies from Cornell University, devoured the literature on this sharp-edged, steel wire’s fraught history.

“The initial spark for ‘Wired’ came from a visit to the Whitney Museum, where Sheppard viewed Melvin Edwards’ 1969 barbed wire sculpture, ‘Pyramid Up and Down Pyramid.’ …

“It led her down a barbed wire rabbit hole. Sheppard’s source material lends multiple metaphors to what has become her latest multimedia dance piece. Indeed, few pieces of steel are saddled with so much context. Barbed wire is primarily a strict form of forced separation, used in trench warfare and applied in the United States as a means of keeping incarcerated people in, for example, or livestock in and intruders out as ranchers in the American West increasingly claimed land as their personal property.

“Throughout the piece, the dancers wrestle with this unwieldy, unforgiving object, their bodies enclosed by a tangle of wires and barbs. As she continued to explore, Sheppard knew ‘Wired’ had to be an aerial dance. …

“Having never studied aerial dance before, Sheppard and Kinetic Light company members Laurel Lawson and Jerron Herman started from scratch. With support from some 30 artists and engineers with backgrounds in rigging, automation and flight, Sheppard, Lawson and Herman took to the air. …

“ ‘We are not the first disabled artists to fly, by any means,’ she said. ‘There is, of course, in circus arts, a deep and rooted history of disability and flight. That’s not random or new. And there’s a history of disabled dancers also doing aerial work in the UK, New Zealand and the U.S. Part of that history and legacy is to recognize that flight isn’t random. It is perfectly within the tradition and the culture for disabled dancers. What is new here is the construction of the show. It’s not a circus.’

“The process for ‘Wired’ started at Chicago Flyhouse in late 2019. Before the dance and other artistic elements could even begin to take shape, Kinetic Light was faced with huge technical considerations.

“ ‘Before we could even get to “here’s a pretty dance, here’s the choreography,” ‘ she said, ‘we had to get to, “how does this thing fly?” ‘ …

“Lawson, who is also an engineer, assisted in developing the chairs and harnesses needed for her and Sheppard safely ascend into the air. Company member and dancer Herman completes the cast of three and has yet another setup. Herman, who has cerebral palsy, dances sections of ‘Wired’ with a girdle-type harness used to suspend him above the stage. …

“Sheppard reiterated that she and Lawson are not the first disabled artists to fly ,,, but they are the first disabled dancers in the U.S. to explore a thorough compendium of techniques, which includes low flying on hard lines and bungees, as well as flight patterns suspended from joystick-operated, motorized cables. The pandemic enabled Kinetic Light to make connections with then-unemployed entertainment workers with expertise in automation who would not otherwise have been available.

“In a way, ‘Wired’ serves as a primer on wheelchair flight.

“ ‘Understand, this is not actually documented,’ Sheppard said. ‘There are no books. There are no teachers … All of these questions that are easily available to non-disabled aerial artists because there’s a history and tradition here — we just had to figure that out bit-by-bit.’ ”

More at the Chicago Tribune, here.

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Photo: Hong Seo-yoon 
Hong Seo-yoon is a South Korean advocate for accessible tourism. In her book Europe: There’s No Reason Not to Go, she even has a section on paragliding.

International tourism may be in a Covid-19 slump, but there are lots of people aching to get back to it. At Public Radio International (PRI), Jason Strother reports on a South Korean world traveler who uses a wheelchair and has shown through her life and writing that sometimes it takes only small changes to enable everyone to travel.

“Hong Seo-yoon maneuvers through shifting clusters of picture-snapping tourists outside of Deoksugung, a palace in downtown Seoul. Before passing through the former royal residence’s wooden gate, she adjusts her motorized wheelchair’s speed ahead of a gradual incline in the stone walkway that leads into a tree-lined courtyard.

“The 32-year-old explains that even small modifications, such as replacing a step with a ramp, give people like her access to places that otherwise would have been difficult if not impossible to enter independently.

“Hong says that many people are often unaware that when it comes to tourism, sightseeing or even extreme sports, many people with disabilities, whether they are blind, deaf or use a wheelchair, ‘all want the same things.’

‘They want to travel, they want to visit places, I don’t think there’s a difference,’ Hong said. ‘Having a disability is not something special or weird.’

“Hong is the founder of Tourism for All Korea, a nonprofit that advocates for greater inclusion in the country’s tourism industry for people with disabilities and makes policy recommendations for improvements in this sector. She’s also the author of Europe, There’s No Reason Not to Go — the first travelogue written by a wheelchair user from her country.

“Her work has informed Seoul’s efforts to make its streets, transit and tourism locations more inclusive for citizens and visitors with disabilities. … A generation ago, a person with a physical or intellectual difference might have been ‘a  shame to their family,’ she said, theorizing this attitude was a consequence of South Korea’s postwar trauma that placed economic growth and competition paramount to other concerns.

“The Korean War in the early 1950s left the South in ruin and poverty. In 2007, South Korea passed the Disability Anti-Discrimination Act, but Hong believes some people still hold onto old biases. …

“Her own experience facing physical and social obstacles underlie her advocacy. When Hong was 10 years old, she suffered a spinal cord injury during a swimming pool accident that paralyzed her from the waist down. At that time, ‘Korea wasn’t accessible at all’ for wheelchair users, she said.

“She recalls her brother pushing her alongside cars in the street since there were no sidewalk curb cuts in her provincial hometown. Hong says she also faced discrimination when her parents were told to send her to a distant institution for people with disabilities because there wasn’t an elevator in the local, four-story grade school.

“Her family instead moved to the Philippines, where a nurturing teacher told Hong that ‘being disabled was not abnormal,’ she said.

“When she returned to South Korea to attend the university, Hong had learned to stand up for herself. She got a taste for activism when her school’s administration refused to relocate a class to the ground floor. Hong fought back and won. …

“Her book idea was rejected by two publishers that told her ‘no one would read about disability stories,’ she said. ‘It really hurt me.’

“After promising to buy any unsold copies, Hong convinced the company Saenggak Bi Haeng in 2016 to take a chance with her book. But, she did not have to live up to her end of the deal — all 3,000 copies sold out, and now, the title is in a second-print run. …

“She believes travel and tourism are ways people with disabilities and the nondisabled can connect with each other and help nondisabled people overcome their biases.

“ ‘Suddenly, they meet a disabled person in their life and they change,’ she said. ‘They change their mind about what [are] disabled people and how to live with disabled people.’ ”

More here.

 

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Photo: Sinclair Miller/Maryland Zoo via the Washington Post
A wheelchair fashioned out of Legos helped this Eastern box turtle, shown in 2018, to recover from a broken shell.

For your delectation today, I offer you two turtle stories. The Washington Post apparently has a thing about turtles, and that’s great. I do, too, remembering fondly long-ago box turtles in Rockland County, New York.

In the first report, Dana Hedgpeth, describes a clever use of Legos to repair the shell of a badly damaged turtle.

“A turtle that had been injured and had a customized wheelchair built for it from Legos has been released into the wild. [The] male Eastern box turtle had been in the care of the Maryland Zoo in Baltimore. … With a transmitter on its back, officials said they’ll be able to keep tabs on it in its native habitat.

“The turtle’s tale started two years ago when it was found by a zoo employee in the park and brought to the facility. The turtle had a badly broken shell and underwent surgery that involved placing metal bone plates, sewing clasps and surgical wire to keep its shell held together.

“Ellen Bronson, senior director of animal health, conservation and research at the zoo, said … ‘We faced a difficult challenge with maintaining the turtle’s mobility while allowing him to heal properly,’ Bronson said.

“Garrett Fraess, who was a veterinary student and in a clinical rotation at the zoo, said at the time that it was key to ‘keep the bottom of the shell off the ground so it could heal properly.’ …

‘They don’t make turtle wheelchairs,’ Fraess said, so he and a team sketched a customized wheelchair. He sent the sketches to a friend in Denmark who is a huge Lego fan, and she made a wheelchair for the turtle.

“The wheelchair worked because the Lego frame surrounded the turtle’s roughly grapefruit-size shell, and with plumber’s putty it attached to the edges of the upper shell, which got it off the ground and allowed it to move its legs, according to Fraess. …

“The turtle used its Lego wheelchair through the winter and spring of 2019 until ‘all of the fragments were fused together and the shell was almost completely healed,’ according to Bronson. Then they took off the wheelchair and the turtle underwent ‘exercise time’ to build up strength. …

“The zoo has done a project to monitor Eastern box turtles at the park since 1996. They’ve recorded, tagged and released more than 130 wild turtles. The work is used to help conservationists see how the turtles, which are native to Maryland, are doing in an urban setting.” More.

The second article, by Karin Brulliard, is about returning the rare Kemp’s ridley turtle and green turtles to the sea at Assateague, Maryland, a place that (along with Chincoteague) I associate more with Marguerite Henry and her children’s books about miniature wild horses.

“Seven months after washing up on the shores of Cape Cod, Mass., No. 300 stoically scanned the powdery beach while being held aloft by Maryland’s second-highest elected official.

“It was hardly the strangest thing to befall the young Kemp’s ridley sea turtle, a Gulf of Mexico native, since the animal found itself in cool northern waters in November. Its body temperature plunged, making it too lethargic to swim. It was scooped up by volunteers who found it near-dead on shore. It was trucked to Baltimore, then warmed by aquarium workers who named it Muenster and treated its pneumonia.

“The turtle swam in a pool with other injured turtles named for cheeses, and swam some more, not knowing that outside, pandemic-related shutdowns were delaying its return to the Atlantic waters now before it.

“Soon, Lt. Gov. Boyd K. Rutherford (R), jeans rolled up to his knees, placed the turtle into breaking waves as beachgoers cheered this glint of hope at a time of tumult on land. And without a look back, Muenster became the first of 10 Kemp’s ridley and green sea turtles to paddle forth on this late June morning into an ocean. …

“Six of seven sea turtle species are threatened or endangered, their populations driven down by development of the beaches where they nest, pollution of the waters where they forage, fishing nets and lines that accidentally catch them, and hunting and trade. But even against that dim backdrop, the trends for those that swim U.S. waters look fairly positive, according to one recent study: Endangered species protections have helped six of eight populations rise.” More.

Lt. Gov. Rutherford of Maryland cares about turtles? That can only be a good thing.

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Photo: Social Candy
Milwaukee Ballet dancer and teacher, Janel Meindersee, tries out a wheelchair herself as she teaches her students. Parents watch with pride.

Heartbreaking as it is to see anyone make fun of a person with a disability, which does happen in these harsh times, it’s important to remember the advice that the mother of Mister Rogers gave him long ago: “Look for the helpers. There are always helpers.”

In Milwaukee, some unusual helpers are found in a dance company.

Amy Schwabe writes at Milwaukee’s Journal Sentinel, “Nine-year-old Namine Eiche may be in a wheelchair, but that doesn’t stop her from being a ballet dancer. That’s thanks to Tour de Force, a partnership between Milwaukee Ballet and Children’s Hospital of Wisconsin that’s been providing ballet classes to children with disabilities since 2014.

“Just last year, the opportunity was opened up to children in wheelchairs through the ‘Glissade’ class, very appropriately named since ‘glissade’ is the French word for ‘glide.’

“Janel Meindersee, a Milwaukee Ballet dancer who teaches Glissade, explained how the children are able to dance.

” ‘We teach a lot of the same things as a normal ballet class — how to spot your head when you move, the quality of arm movements, how to count music and how to stay in line when dancing together,’ Meindersee said. …

“Meindersee said that seeing kids in wheelchairs in other Tour de Force classes was the impetus for Glissade.

” ‘There was a girl in a wheelchair coming to one of our other Tour de Force classes,’ Meindersee said. ‘She was able to get out of her wheelchair sometimes, but she was most comfortable in her chair. We thought there had to be other kids who can’t even get out of their chairs at all. …

“After having taught two sessions of Glissade, Meindersee is ‘blown away’ by the skill, talent and strength of her students — especially when she gets in a wheelchair herself to try out the dance moves. She laughs with her students, pointing out that she’s not as skilled in wheelchair maneuvers as her students are.”

More at the Journal Sentinel, here. Just imagine the joy and self-confidence of these young dancers take home with them after a class. Perhaps some will join one of the professional wheelchair ballets someday. Or start their own company.

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Superheroes are coming in all shapes and sizes these days. Here’s an Afghan wheelchair-bound superhero created by a teen born in Afghanistan. Once an admirer of anti-Taliban warlords, he found Gandhi and Mandela a revelation and wants kids to know about nonviolent superpower.

Cristina Quinn reports at Public Radio International, “Mohammad Sayed is unstoppable. At the age of 19, he is already an inventor and entrepreneur. One half of his business, called RimPower, is providing assistive technologies. The other half is a comic book series centered around the hero Wheelchair Man.

” ‘My goal is to help people in wheelchair[s] both psychologically and physically,’ he says. ‘A world where every wheelchair user is empowered rather than disabled.’

“Sayed, who goes by ‘Mo,’ knows firsthand what that’s all about. At age 5, he suffered a traumatic spinal cord injury when his home in Afghanistan was bombed. …

“He spent seven years in a trauma hospital because he had nowhere else to go. To survive, he became a hustler, wheeling around the ward working odd jobs — repairing staffers’ cellphones and taking pictures for photo IDs. He even taught himself English by listening to the BBC — and charged for translation. …

“He never gave up. Even when the hospital staff eventually had to evacuate, leaving him alone with just a few guards. …

“His luck would change six months later, when Maria Pia-Sanchez, an American nurse working in Afghanistan, came looking for him. A doctor who knew Sayed asked her to check on him.

“ ‘So we stopped by the hospital where he had been living to see if anyone was there and if they knew where he was,’ Pia-Sanchez says. … Even though Sayed was so young, Pia-Sanchez says he was entrusted with many things in the hospital that the older staff were not. …

“ ‘Even though that life has ended for me, you know, you will never feel certain,’ the teenager says. ‘These are the kinds of things that stay with you. But what defines us as humans is that some of us don’t give in.’

“His idea of not giving in started to shift when he learned about Mahatma Gandhi. That was his introduction to using non-violence as a weapon, and the whole concept blew his mind.

“ ‘Before learning about Gandhi, my role models were warlords,’ Sayed says. …

“Those warlords were replaced with Gandhi, Martin Luther King, Jr., and Nelson Mandela. But in the pantheon of heroes, there was still a piece missing. And it wasn’t until Sayed attended Comic-Con in Boston a couple years ago that everything came into full focus. …

“ ‘At Boston Comic-Con, I was like, why is there nobody representing the wheelchair community? Why isn’t there a wheelchair superhero wheeling around here?”

“So he set out to make Wheelchair Man, an Afghan-American superhero who, upon making eye contact, shows a would-be criminal the consequences of his actions before he commits them. That’s his power.”

More here.

Illustration: Mohammad Sayed
Afghan wheelchair-bound superhero created by Mohammad Sayed.

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Fun time at Mass Challenge!​

Mass Challenge is an incubator “accelerator” for entrepreneurial companies, perhaps the biggest worldwide. I’ve blogged about it before.

Of the 125 finalists in this year’s challenge, 48 gave one-minute pitches last night to an audience of about 200 friends, family, and investors at 1 Marina Park on the Boston waterfront.

Besides being entertaining, it was inspiring. So many people working hard on so many great ideas!

A couple noteworthy presentations were from MIT people. Helmet_Hub tapped the skills of MIT materials science students to create a helmet-vending machine. They have already partnered with the City of Boston’s Hubway, which lends bikes point to point. Another MIT-based organization, Global Research Innovation & Technology (GRIT), uses bicycle parts to make inexpensive wheelchairs for Third World patients. Very impressive. (More on GRIT here.)

I also wrote down that soundfest has a better kind of hearing aid. Prime Student Loan screens students so banks can make a safe loan even if graduates have no FICO score.

Wanderu was one of the few female-run companies. It does for ground travel what kayak and others do for air. Zoomtilt creates ads that are said to be so funny and entertaining, people actually want to watch them. Guided Surgery Solutions helps oral surgeons drill into the right place.

Roameo helps you find out what’s going on near where you are right now. Newartlove helps artists sell their work. Social Made Simple helps small businesses with social networking. (Check it out, Luna & Stella.) CellanyxDiagnostics has a more precise test for prostate cancer than the PSA.

I will likely follow up on a worthy-cause business called Bootstrap Compost. They teach you to compost, give you the bucket, pick it up, deliver it to farms, and give leftover compost to schools. You can have some, too. Bootstrap is very low-tech, doing most travel on bikes. It is proud of keeping tons of food scraps out of landfills.

I was also impressed at the Mass Challenge diversity — men, women (OK, not many women), old, young, scientists, artists, business types, different races, different nationalities, humorous, solemn.

No need to worry about the economy long term. Not with the joy of invention alive and well.

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