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Photo: Deniz Altindas via Unsplash.
New approaches in health care include meditation exercises and hospital care at home.

A couple of my doctors are convinced that people who are good at daily meditation are building new brain cells. I’m not convinced that I can do it, but I’m giving it the old college try. I go to a weekly class where we just sit and breathe. And I listen to an online meditation I like because it seems to give me permission to be “off duty” in so many ways. Trying to be good at meditation, for example, is out.

In another new approach to improving health care, hospitals are responding to both costs and the understanding that many acute-care patients fare better if they get the care they need at home, in their familiar surroundings.

Paula Span pursues the insights at the New York Times.

“Late last month, Raymond Johnson, 83, began feeling short of breath. ‘It was difficult just getting around,’ he recently recalled by phone from his apartment in the Jamaica Plain neighborhood in Boston. ‘I could barely walk up and down the stairs without tiring.’

“Like many older adults, Mr. Johnson contends with a variety of chronic health problems: arthritis, diabetes, high blood pressure, asthma, heart failure and the heart arrhythmia known as atrial fibrillation.

“His doctor ordered a chest X-ray and, when it showed fluid accumulating in Mr. Johnson’s lungs, told him to head for the emergency room at Faulkner Hospital, which is part of the Mass General Brigham health system.

“Mr. Johnson spent four days as an inpatient being treated for heart failure and an asthma exacerbation: one day in a hospital room and three in his own apartment, receiving hospital-level care through an increasingly popular — but possibly endangered — alternative that Medicare calls Acute Hospital Care at Home.

“The eight-year-old Home Hospital program run by Brigham and Women’s Hospital [is] one of the country’s largest and provided care to 600 people last year; it will add more patients this year and is expanding to include several hospitals in and around Boston.

“ ‘Americans have been trained for 100 years to think that the hospital is the best place to be, the safest place,’ said the program’s medical director, Dr. David M. Levine.

‘But we have strong evidence that the outcomes are actually better at home.’

“A few such programs began 30 years ago, and the Veterans Health Administration adopted them more than a decade ago. But the hospital-at-home approach stalled, largely because Medicare would not reimburse hospitals for it. Then, in 2020, Covid-19 spurred significant changes.

“With hospitals suddenly overwhelmed, ‘they needed beds,’ said Ab Brody, a professor of geriatric nursing at New York University and an author of a recent editorial on hospital-at-home care in the Journal of the American Geriatrics Society. ‘And they needed a safe place for older adults, who were particularly at risk.’

“In November 2020, Medicare officials announced that, while the federally declared public health emergency continued, hospitals could apply for a waiver of certain reimbursement requirements — notably, for 24/7 on-site nursing care. Hospitals whose applications were approved would receive the same payment for hospital-at-home care as for in-hospital care.

“Since then, Medicare has granted waivers to 256 hospitals in 37 states. … But Medicare’s waivers are not permanent. The public health emergency remains in effect until January; although the Biden administration will likely extend it, state health officials are anticipating its end at some point next year, perhaps by spring.

“What will happen to hospital-at-home care then? Twenty-seven percent of programs that participated in a poll by the Hospital at Home Users Group said that they were unlikely to keep offering the option without a waiver, and 40 percent were unsure; 33 percent said that their programs were likely to continue. …

“Studies have repeatedly documented the risks of hospital stays to seniors, even when the conditions that made the stay necessary are adequately treated. Older adults are vulnerable to cognitive problems and infections; they lose physical strength from inadequate nutrition and days of inactivity, and they may not regain it. Many patients require another hospitalization within a month. One prominent cardiologist has called this debilitating pattern ‘post-hospital syndrome.’

“Had Mr. Johnson remained in the hospital, ‘he would have been lying in bed for four or five days,’ Dr. Levine said, adding: ‘He would have become very deconditioned. He could have caught C. diff or MRSA’ — two common hospital-acquired infections. ‘He could have caught Covid,’ Dr. Levine continued. ‘He could have fallen. Twenty percent of people over 65 become delirious during a hospital stay.’

“Patients must consent to hospital-at-home care. Almost one-third of Brigham and Women’s patients decline to participate because the hospital setting feels safer or is more convenient. But Mr. Johnson was delighted to leave, when an attending doctor told him that his conditions were treatable through hospital-at-home care. …

“At home, a doctor saw him three times, twice in person and once by video. A registered nurse or a specifically trained paramedic visited twice daily. They brought the drugs and the equipment Mr. Johnson needed: prednisone and a nebulizer for his asthma, and diuretics (including one administered intravenously) to reduce the excess fluid caused by heart failure. All the while, a small sensor attached to his chest transmitted his heart and respiratory rates, his temperature and his activity levels to the hospital.

“Had Mr. Johnson needed additional monitoring (to ensure that he was taking medications as scheduled, for instance), food deliveries or home health aides, the program could have provided those. If he needed scans or experienced an emergency, an ambulance could have returned him to the hospital.

“But he recovered well without any of those interventions. About a week after he was discharged, Mr. Johnson said he was ‘much better, much better,’ and that he would recommend hospital-at-home care to anyone. …

“ ‘Are there people who need to be in a hospital?’ Dr. Leff said. ‘Absolutely.’ Surgeries, complex testing and intensive care still require a building and its staff. Nonetheless, he added, hospital-at-home initiatives demonstrate that more care could be provided outside bricks-and-mortar facilities.

“ ‘Hospitals in the future will be big emergency rooms, operating rooms and intensive care units,’ [Dr. Bruce Leff, a geriatrician at Johns Hopkins University School of Medicine] said. ‘Almost everything else will move to the community — or should.’ ”

More at the Times, here.

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Photo: Cairo Scene.
Last fall, the Mersal Foundation, a health-care nonprofit in Egypt, received one large award from AstraZeneca for its work with lung cancer patients and another to aid those afflicted with the Coronavirus.

When I read a story like today’s, which is about a nonprofit that’s filling the gaps in a health-care system, I think of my favorite Allen Ginsberg poem:

“When Music was needed, Music sounded
“When a ceremony was needed, a teacher appeared
“When students were needed, telephones rang
“When cars were needed, wheels rolled in …”

It reminds that good people can make things happen.

Sudarsan Raghavan reported recently at the Washington Post, “The pleas for help were flooding in. By 2 p.m., Raba Mokhtar was picking up the 131st call of the day to the Mersal Foundation’s 24-hour hotline. Like the vast majority, it was related to the coronavirus pandemic.

“On the other end of the line, a woman was frantically describing the condition of a relative, a 67-year-old man who had tested positive for the virus. He had a 100-degree fever and could hardly breathe. They had first tried the Health Ministry’s hotline to look for a bed in a government hospital, with no luck. …

“In a country where government health resources can be either stretched or inadequate and where most people cannot afford hospitalization, a once little-known charity has become a lifeline for thousands of Egyptians. For the past year, and especially during the latest coronavirus wave, the Mersal Foundation has contracted and paid for beds in private hospitals or provided oxygen tanks to people in need.

“Mersal and its founder, Heba Rashed, have become so trusted that more than a quarter-million people now follow her social media accounts to learn the true impact of the pandemic in Egypt. …

“Egypt has reported about 165,000 infections and 9,100 deaths since the start of the outbreak. Medical experts and even government ministers have publicly said the real numbers are far higher.

“Doubts among the public deepened in January when a video went viral online claiming that coronavirus patients at a government hospital had died because of a lack of oxygen. The government denied the report, but a week later Sissi ordered a doubling of oxygen production to meet increased demand.

“Against this backdrop, the Mersal Foundation has emerged as a trusted oasis of care. And Rashed, 40, has become a coronavirus prognosticator for her legions of followers.  

‘It makes me feel very responsible for every word I utter,’ she said. ‘People get affected by everything I say.’

“Growing up in Jordan and the Egyptian desert town of Fayoum, Rashed never intended to start a charity. In college, she studied Spanish and Arabic and later earned a master’s degree in linguistics and several diplomas in other fields. She later worked as a linguist and as a project manager. In her spare time, she volunteered at a local charity.

“Soon, Rashed said, she realized she had ‘no passion’ for her job and found her charitable work more fulfilling. She also noticed there were few nonprofit groups in Egypt specializing in health issues. So with two friends, she launched Mersal five years ago. ‘It was truly hard at the start,’ Rashed recalled. ‘We had no connections.’

“Eventually, they found a sympathetic donor. He gave roughly $1,300, and they set up the charity in Rashed’s apartment. Slowly they grew, soliciting donations mostly on social media. They began to get noticed by some larger donors.

“Today, the foundation has four offices in Cairo and one in the northern city of Alexandria, with roughly 200 employees, according to Rashed. …

“ ‘The second wave is much more vicious than the first one, in terms of the intensity of the infection,’ Rashed said. ‘The number of infections is bigger than the last wave. The symptoms are much more.’

“She was infected. So were more than half of her 100 employees in the office, forcing mass isolations. ‘It made it very hard to do our work,’ Rashed said matter-of-factly. …

“The case of the 67-year-old man who had been struggling to breathe was typical. His oxygen levels were extremely low, though he was using a tank. … Mokhtar, the employee who took the call, asked the man’s relative to send a complete medical report, X-rays of his lungs and any bloodwork. Mokhtar gave her the WhatsApp number.

“ ‘We will show them to the medical department, and we will get you a bed when one becomes available,’ Mokhtar said. ‘Peace be with you.’

“Finding a bed usually takes a few hours but can stretch into a day or two, employees said. … The foundation has contracted with more than 30 private hospitals. In some cases, patients who need help getting care can pay some or all costs. Mostly, though, the charity pays as much as $1,300 per day for hospital beds in intensive care units, money obtained in large part through online appeals for donations.”

More at the Washington Post, here. Grateful stories may be found at the Mersal Foundation Facebook page, here,

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Photos: Off Their Plate
Off Their Plate cooks and delivers healthful meals to healthcare workers.

Amid government failures, can individual efforts ever be enough in a catastrophe like today’s?  I think they can be because feeling good about doing something concrete feeds on itself and simultaneously inspires others. You are probably doing things yourself, like donating to a food bank or calling friends you don’t normally call who are at home alone.

Suzanne, for example, has signed up on Twitter to promote a desperate call from Rhode Island emergency doctors for masks and other personal protection equipment (PPE). Please write in Comments what you are up to. No matter how small, I am interested.

Devra First has a nice story at the Boston Globe, “With restaurants closed for dine-in business, the industry is suffering, and many people have lost their jobs. At the same time, workers on the front lines of the coronavirus don’t have time to prepare nutritious meals to help keep them going. A new organization, Off Their Plate, is working to address both problems.

“It began when Natalie Guo, a medical student at Harvard who previously worked in business, reached out to local chefs Ken Oringer (Little Donkey, Toro, and more) and Tracy Chang (Pagu). The idea: Raise money to provide meals to health care workers, and pay cooks now out of work to make them.

‘In 10 days, we raised something like $80,000,’ Guo says, and the effort has expanded to New York, Pittsburgh, San Francisco, and Los Angeles.

“By [March 26], its fifth day of operation in Boston, Off Their Plate had served close to 1,000 meals in the area — to Massachusetts General Hospital, Brigham and Women’s, Faulkner, Boston Medical Center, and Beth Israel Deaconess, with more coming soon, including Carney Hospital, Boston Health Care for the Homeless, and other federally qualified health centers. Meals go to everyone from nurses to hazmat teams to the people working the front desk. ‘It’s a massive effort here,’ Guo says. ‘It’s not just MDs. Very soon this is going to consume the entire health force.’

One hundred percent of donations go to wages and meal costs. According to a ticker on the website [March 27], Off Their Plate has so far raised enough to cover 6,500 meals, more than 2,000 work hours, and $32,500 in wages. A $100 donation covers the cost of providing 10 meals.

“ ‘It’s been really fortuitous to be able to get a lot of the people who are not able to collect unemployment or people we decided to reach out to … and be able to help them earn some money,’ Oringer says. ‘A lot of them have been with us for more than 10 years. We are trying to take care of our family and our community. We’re getting food from purveyors, from fishermen, who are getting really, really hurt by all of this.’ …

“They are creating recipes and safety protocols that can be passed along to partner chefs in other cities, so they too can join the effort. ‘We want to make sure we are taking the utmost precaution in the health and safety of our own employees and the people they are feeding. The last thing we want to do is be part of the problem,’ Chang says.” More here.

Erin Kuschner has another take on the story at Boston.com, which is separate but related to the Boston Globe. She adds, “Guo, who was doing her clinical rotation at Massachusetts General Hospital before she launched Off Their Plate, is amazed by the charitable actions of everyone involved.

“ ‘Our goal is to serve Boston as well as we can, which means getting to volunteer for the homeless and getting to areas where healthcare workers are really in need,’ she said.”  The unemployed restaurant workers get paid, but not the others involved. Of them Guo says, ‘Not a single person has asked for a single dollar of service, and that’s just really incredible.’ ”

Off Their Plate meals being prepared before delivery.

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Photo: John Tlumacki/Globe Staff
Cathy Corbett got her hair cut at HER on a recent Saturday. HER is a weekly event from the Boston Health Care for the Homeless Program.

When I think of all the health care I’m able to utilize (cataract surgery today, for example), my heart breaks for people who don’t have coverage. A special program in Boston aims to help homeless women get some of what they need while also lifting their spirits with fun activities.

Elise Takahama writes at the Boston Globe, “Linda Winn … sobered up six months ago, but she’s been battling homelessness for the past year. Winn, a 51-year-old Somerville native, said she’s working with a few organizations to find permanent housing, but for now, she is staying at Woods-Mullen, a South End homeless shelter.

“A few months ago, she discovered a haven of medical care — and free haircuts — just around the corner..

” ‘I started coming a few months ago. I love the staff. It’s been helping with depression, helping with any problem I might have,’ said Winn. …

“In one corner, a group of women played bingo, while others danced and sang karaoke in the middle of the room. A table near the back was filled with markers, beads, and nail polish. Movies were shown in a separate room.

“All these activities are part of HER Saturday, a program that offers a medical clinic for women who have suffered abuse, are homeless, or are in need of health care services, said Melinda Thomas, the program’s associate medical director. …

“The HER Saturday program was launched in February 2016, Thomas said. When it first started, about 30 to 50 women would wander through the doors. Now, at least 100 women — sometimes up to 200 — line up at 7 a.m. every week, she said.

“The Saturday clinic not only gives the women a chance to get manicures and watch romantic comedies but also provides preventative health care services and cancer screenings, which include mammograms and Pap smears. Homeless women have higher rates of mortality from breast and cervical cancer, Thomas said. A medical provider, a nurse, a case manager, a social worker, and a behavioral health counselor are available every week.” More at the Globe, here.

Those of us who can have a medical check-up, a haircut, or a tasty meal whenever we want really should feel gratitude every day. I also feel gratitude for the people behind programs like this, which benefit us all if only indirectly.

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Photo: Martina Bacigalupo for The New York Times
An American pediatric specialist during a radiology teaching session with pediatric residents in Kigali, Rwanda. In the past 15 years, Rwanda has worked to build a near-universal health care system.

We like to think that American medical care is top drawer, but in some developing countries, access, at least, is much better. Would you believe Rwanda, where Paul Farmer’s Partners in Health and others have offered help to local leaders?

Eduardo Porter has the story at the NY Times, “Rwanda’s economy adds up to some $700 per person, less than one-eightieth of the average economic output of an American. A little more than two decades ago it was shaken by genocidal interethnic conflict that killed hundreds of thousands. Still today, a newborn Rwandan can expect to live to 64, 15 years less than an American baby.

“But over the past 15 years or so, Rwanda has built a near-universal health care system that covers more than 90 percent of the population, financed by tax revenue, foreign aid and voluntary premiums scaled by income.

“It is not perfect. A comparative study of health reform in developing countries found that fewer than 60 percent of births there were attended by skilled health workers. Still, access to health care has improved substantially even as the financial burden it imposes on ordinary Rwandans has declined. On average, Rwandans see a doctor almost twice a year, compared with once every four years in 1999.

“Rwandan lives may be short, but they are 18 years longer than they were at the turn of the century — double the average increase of their peers in sub-Saharan Africa. …

“In some dimensions of health care, [Rwanda] gives the United States a run for its money.

“Its infant mortality rate, for one, dropped by almost three-quarters since 2000, to 31 per 1,000 births in 2015, vastly outpacing the decline in its region. In the United States, by contrast, infant mortality declined by about one-fifth over the period, to 5.6 per 1,000 births. …

“Critically, Rwanda may impress upon you an idea that has captured the imagination of policy makers in even the poorest corners of the world: Access to health care might be thought of as a human right.”

Read how poor countries, such as Ghana, Peru, Vietnam, and Thailand, are acting on that belief, here. At the rate they’re going with access, it is reasonable to suppose that more citizens will choose a medical profession and that quality improvements will follow.

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Photo: Alison Wortman
Ingrid, a Mayan community health promoter in Guatemala, is delivering direct health services to another Mayan woman in the Mayan language.

US city hospitals have known for years that it’s important to provide health care to patients in their own language. That’s why hospital interpreter is a growing career option. But you can imagine how grateful a patient might be if the providers themselves spoke her language.

In remote parts of Guatemala, a socially conscious coffee company is supporting an initiative to do that.

As Alison Wortman wrote at the Dean’s Beans blog in May, “When I looked through all the colorful photos I took while on my most recent Dean’s Beans development trip to Guatemala, this one stuck out the most. …

“What we are witnessing here is no small feat. This is a picture (above) from a home-visit in a remote mountain village to check up on a new mom and her baby (the little guy is strapped to her back). What makes the visit so extraordinary is that Ingrid, a Mayan community health promoter, is delivering direct health services to another Mayan woman in their own Mayan language.

“This direct, language inclusive health service from the Mayan Health Alliance (known as Wuqu’kawoq) is the only health organization in Guatemala providing home-based health care to indigenous populations in their own Mayan languages. This women’s health program is one of many in their comprehensive health-care programming which includes primary and women’s health services, nutrition and early child development, treatment and support for chronic disease, medical case management services and clean water education.

“In addition to culturally inclusive services, [the] community outreach workers at Wuqu’kawoq have also become role models for the future generation of girls in a country where 70% of indigenous girls do not make it past 6th grade. …

“Dean’s Beans sent three social workers to Guatemala (Annette Cycon, Jean Marie Walker and myself) for 10 days to prep, introduce and facilitate trainings in Annette’s Group Peer Support Model (GPS). GPS is a powerful and effective group support model that focuses on social support groups to address isolation, mental health concerns, self-esteem building and women’s empowerment. …

“At the end of class the woman served lunch. They all ate half of their portions and wrapped the rest in a bowl covered in bright cloth to take home. Although at first we thought it was to share with their families, we learned later [that] it was to prove to their husbands and mother-in-laws that they had indeed gone to class. This was another example of the oppressive conditions many women face in a country where gender based violence are at epidemic levels.” More here.

That comment reminds me of certain Syrian refugee women I work with. The men are definitely controlling what they do. I think you have to be careful to teach without messing around with another woman’s culture unless you are sure that is what the woman wants. So hard to witness some things, though.

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In last week’s Boston Globe, Bella English had a sad-happy story about a nonprofit that reaches out to families impoverished by their children’s cancer, Family Reach Foundation.

English writes that Carla Tardif once promised a friend who died of cancer that she would help families who were struggling with a child’s treatment. In searching for the best way to do that, she ended up at Family Reach, which helps families get back on their feet. The stories she hears are heartbreaking.

“ ‘On top of watching your child suffer, people get threatening eviction notices, calls from collection agencies, or they can’t make a car payment so they lose the car and can’t get their child to treatment,’ says Tardif.

“Medical hardship is one of the leading causes of personal bankruptcy in the nation,” writes the Globe‘s English. “According to a Harvard University study, more than 62 percent of bankruptcies are caused by overwhelming medical expenses — and cancer is the most costly. ‘It’s because a parent needs to stop working to take care of the child,’ says Tardif. ‘The average cancer treatment without complications is two years.’ …

“ ‘What I’ve learned is that it’s about so much more than money,’ Tardif says [of her work]. ‘That someone cares and gets it, has a really profound effect on families.’

“Just ask Raquel Rohlfing, who at fund-raisers tells her story. Homeless, with a son [Mikalo] who had undergone a bone marrow transplant, she got a call from Tardif, who arranged payment for a year’s rent on a Winchester apartment, not far from her own house.”

In Rohlfing’s case, Tardif really went the extra mile.

English writes, “Tardif’s husband, a builder, put in a new kitchen and floors, and fixed the bathroom in the apartment. But Tardif wasn’t finished. She is also executive director of Music Drives Us, the nonprofit founded by car magnate Ernie Boch Jr. Rohlfing needed a job, and Tardif needed help, so she hired her at Boch’s foundation.”

Read more.

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As long as health insurance is out of reach for so many, creative approaches to coverage are likely to keep sprouting up.

I knew a doctor 30 years ago who took care of elderly single people for life — and inherited their houses. He ended up with a lot of houses.

More recently, CBSNewYork/AP reported that “a new program lets uninsured New York City artists exchange their art for medical services.

“Tony-Award winning actor Lin-Manuel Miranda and rapper and radio personality Roxanne Shante helped launch the ‘Lincoln Art Exchange’ at Lincoln Hospital in the Bronx” early this year.

“Under the program, artists will earn ‘health credits’ for every creative service they perform. In exchange they’ll be able to obtain doctor’s visits, laboratory tests, hospitalization, emergency care, dental care and prescriptions at Lincoln.” Read more at CBS Local.

I would be interested in other unusual examples of how people are accessing care today.

Photograph: nyc.gov

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Dr. Paul Farmer, the subject of a great Tracy Kidder book called Mountains Beyond Mountains, has spent many years delivering medical care — and working to alleviate poverty — in remote areas of Haiti. His nonprofit organization, Partners in Health, takes the word “partners” seriously. The teams do not tell the locals what is good for them but makes a point of learning from them and helping them get what they need.

In recent years, Farmer has been in demand in other countries, too. One focus area has been Rwanda. I liked a recent Boston Globe article on the approach to building a Partners in Health hospital there.

“The designers quickly realized that the challenge was not simply to draw up plans, as they had first thought, but rather to understand the spread of airborne disease and design a building that would combat — and in some cases sidestep — the unhealthy conditions common to so many hospitals.

“Learning from health care workers that hospital hallways were known sites of contagion, poorly ventilated, and clogged with patients and visitors, MASS Design decided that the best solution would be to get rid of the hallways. Taking advantage of Rwanda’s temperate climate, they placed the circulation outdoors, designing open verandas running the lengths of the buildings. …

“When it came to building, MASS Design looked at the Partners in Health model of involving local poor communities in health care, and realized that they could apply the same ideas to the construction process. The hospital was built entirely using local labor, providing food and health care for the workers. Unskilled workers received training that would help them get more work; and skilled laborers, notably the Rwandan masons who built the hospital’s exterior from carefully fitted together local volcanic stone, refined their craft and found themselves in demand all over the country. The construction process also beefed up local infrastructure — new roads and a hydroelectric dam — creating more jobs and literally paving the way for future projects.”

To paraphrase what Farmer often says, the biggest challenge to health is poverty. Read more.

Update on the designers from the June 19, 2012, Boston Globe.

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